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View Full Version : Chiara malformation in humans



PamH
30th October 2008, 10:29 AM
My husband's ex secretary, a wonderful young lady with two small children just found out she has this. Because we have researched it in Cavaliers, we were obviously heartbroken thinking of the pain she must have. I posted about this on the other board and someone told me there was an article on this board about it. Can anyone point me in the right direction? I did search, but could find nothing. I have found asap.com which I am going to forward to her.
Pam

Lani
30th October 2008, 10:38 AM
Pam, I think this might have been the article I was referring to:

http://board.cavaliertalk.com/showthread.php?t=24548&highlight=chiari

Karlin
30th October 2008, 11:06 AM
I am sorry to hear of her diagnosis. ASAP is a great organisation.

This is also an excellent site with lots of articles and info on research, written in an easily understandable way:

http://www.conquerchiari.org/index.htm

The Ann Conroy Trust is a major UK Chiari/SM organisation and their website might be helpful:

http://www.theannconroytrust.org.uk/

redhare
30th October 2008, 01:45 PM
There is a young woman in my town who has chiaria malformation. Here is an article from the local paper:

http://www.wickedlocal.com/wrentham/news/x1213461975/Sharing-her-story-to-educate

PamH
31st October 2008, 01:10 AM
Thank you I have sent along the Wrentham article. We live in Southern NH so very close to that area. We go to the outlet mall there sometimes.
I have also sent the websites.
Pam