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meljoy
24th February 2009, 10:12 PM
hi,

Think of us tomorrow (Wednesday) as Leo has an MRI at 12.30.
Im dreading what deep inside I know Im going to be told. He hasnt had a screaming attack for 9 days now and I am truly thankful for that. Its a horrible feeling as many of you know.......I'll post more tomorrow.

Mel :(

ilsamom
24th February 2009, 10:43 PM
Good luck!!!

I'll be thinking of you!

Jen and Ilsa

HollyDolly
24th February 2009, 11:24 PM
It's seems so many of our forum members are having to go through this terrible ordeal, and it just does not seem fair. I do hope those who might come on to this board to see whats going on come to accept what a huge problem SM is.

Will be thinking of you on Wednesday, support is here if you need it.
Nanette:hug:

Nicki
24th February 2009, 11:28 PM
Will be thinking of you Mel - paws crossed for the best possible news.

I know it seems like a lot of people are going through this at present, but than goodnees Karlin set up the board so we have somewhere to come for information, help, advice and support :thmbsup:

Margaret C
25th February 2009, 12:47 AM
Hello Mel,

I'm thinking of you & little Leo.

Best wishes, Margaret C

*Pauline*
25th February 2009, 01:26 AM
We'll face this together Mel. You drive carefully tomorrow. Call me when you are ready. :hug:

pippa
25th February 2009, 08:57 AM
Best of luck to little Leo today..so sorry you are going through this.

meljoy
25th February 2009, 09:20 AM
A huge thank you for your support......I cant tell you what it means. I feel sick this morning! and Leo's got the hump because I wont give him his breakfast!!

Anyway I'll post later when I know more.Mel:(

PS Thanks for the chat last night Pauline you were a great support x

harleyfarley
25th February 2009, 10:14 AM
Good luck, let us know how you get on, I wouldnt swap places with you, and theres nothing i can do to help, im glad pauline is there for you she is great. di (hugs for leo)

*Pauline*
25th February 2009, 12:16 PM
Thinking of you and Leo today. :hug:

Lani
25th February 2009, 01:26 PM
good luck to you & Leo:xfngr:

Spangly
25th February 2009, 01:39 PM
Hello Mel
Just wanted to say that I understand how you are feeling (I went through this last Nov) and that I send you love, positive thoughts and lots of hugs for little Leo.
Christine and Spangle cavtiny

tilly
25th February 2009, 04:57 PM
Hi Mel,

We have just had Tilly MRI'd on Tuesday and to my great surprise she has only a slight malformation of the skull. There is no sign of SM but we have to monitor her closely.
I can only hope that you also have good news, it is most sickly feeling that anyone can have when they go through this.
The best of luck to both of you


Best Wishes

Sam

meljoy
25th February 2009, 06:01 PM
Thanks again for the support. What fantastic news about Tilly!!

Well we are no closer to knowing. Leo didnt get the scan today!! The vet doing it was called in to emergency surgery just before!!
Another vet examined him suggested they keep him overnight and hopefully the neorologist will see him tomorrow.

The not knowing is driving me crazy. They did do a full exam on him but couldnt say for sure anything to help. I asked him his opinion and he said he felt I should prepare myself for a positive diagnosis.

The worst thing is he also warned me Leo might not be home until Friday!!

The house is eerily quiet without him. I really hope he's home soon!!

Will post more when I know.

Mel:(

*Pauline*
25th February 2009, 06:10 PM
Hi Mel, in a mad rush so can't write much, sorry :flwr: I read that wrong and thought Leo had emergency surgery!!! :eek: Keep me posted. I was thinking of you both today. :hug: Hope you're not on your own this evening. I was when Dylan was kept in and Sins kept me company on MSN bless her. Speak soon xx

tilly
25th February 2009, 07:30 PM
Hi Mel,

I hope all goes well for you today.
Stick in there, I have just been through it with my Tilly and it is hard emotionally.
I could not keep myself from crying when I had to leave her behind and I did not sleep the whole night.
But it is best of knowing one way or the other.
I wish you the best of luck for today.

Best wishes

Sam

meljoy
25th February 2009, 10:34 PM
Pauline you gave me my first laugh of the day thinking Leo had emergency surgery......sorry!

Mel x

mjones5
26th February 2009, 12:19 AM
Good luck, thinking of you and facing the same thing in the future. At first I didn't want to know, but now I do.

Margaret C
26th February 2009, 01:03 AM
Hi Mel,

We have just had Tilly MRI'd on Tuesday and to my great surprise she has only a slight malformation of the skull. There is no sign of SM but we have to monitor her closely.
I can only hope that you also have good news, it is most sickly feeling that anyone can have when they go through this.
The best of luck to both of you


Best Wishes

Sam

Sam,

What wonderful news about Tilly. I am so pleased for you.

Keeping my fingers crossed for Leo :xfngr:

Margaret C

jasperpaw
26th February 2009, 09:44 AM
Sorry that Leo has had to stay at the vets longer than expected, hope all goes well and you have good results:xfngr:

harleyfarley
26th February 2009, 11:52 AM
Anyone know how Leo got on, di

meljoy
26th February 2009, 05:39 PM
Hi.

I still havent heard from the vet today. They promised they would call. If I havent heard by 6pm Im calling them.
My girls are upset to come home from school and him still not be here.
Im guessing they scanned him today.
The wait is agonising. I will post as soon as I hear.

Thanks for caring

Mel:xfngr:

meljoy
26th February 2009, 07:47 PM
LEO UPDATE..

The vet called. They have observed Leo today and are still unsure about his symptoms. They have said they want to keep him over the weekend and may scan him saturday!
We are all in tears here as we miss him so much. The vet said he is absolutely fine. He's had 3 wallks today and spent the night with the nurses as he's on 24 hr obs.
She also said he has settled in very well and is a really "chilled little man". With a very good appetite!!!

I cant believe it; we're all miserable and in tears and he's having a grand old time!!! Typical Leo.

Mel x:bang:

jasperpaw
26th February 2009, 08:35 PM
It must be a very anxious time for you all, sounds like your little man is treating it like a holiday, it`s a bit like when the children go away when young, you worry like mad and they are having a whale of a time. Hope you don`t have to wait too long now:xfngr:

*Pauline*
27th February 2009, 01:20 AM
That must be pretty stressful Mel. Hope they do it sooner. Do you think they might not do it if they don't see him showing symptoms?

pippa
27th February 2009, 09:28 AM
Oh Mel, you must really be missing him.....And he has the cheek to enjoy all the attention he's getting:), they're worse than kids! Having us worried sick missing them while they have a great time!

I hope he gets his scan and gets back to his mum soon...hope all goes well with the result.

meljoy
27th February 2009, 05:35 PM
Hi
Vet just called. They examined Leo today and when they pressed his mid back he yelped and also his right shoulder. Apart from that he is showing no signs. They have decided to keep him over the weekend to observe him and MRI him on Monday.

She said he's absolutely fine and happy. Enjoying the walks (getting about 4 a day!!) I hope he doesnt think thats going to continue when he gets home! LOL.

The neurologist is going to call me on Monday. I know its best he stays and they observe him but we really want him home. How can one little dog leave such a huge gap by simply not being here!!

So Monday is the big day. Think of us as I know you all will.

Love Mel:xfngr:

Mary
27th February 2009, 05:38 PM
Best of luck to Leo!! It is so hard when they are away from home.

*Pauline*
27th February 2009, 07:10 PM
Glad he's going to have the scan Mel. I think at this stage, you need to know either way. Like we said on the phone, it horrible they are keeping him so long but at least they will not over look any possible other problem.

I didn't realise, I forgot to give Dylan his morning Gabapentin, no wonder he's been playing and barking all day, full of beans. It's a pity he needs these pills.

ilsamom
27th February 2009, 07:21 PM
I didn't realise, I forgot to give Dylan his morning Gabapentin, no wonder he's been playing and barking all day, full of beans. It's a pity he needs these pills.

Pauline, do you find the gapapentin makes Dylan tired?
I think it might make Ilsa tired. The neurologist told me it doesn't but our pharmacist said it often does to humans.

Maybe we should start a new thread but I read that and had to ask right away

Jen and Ilsa

*Pauline*
27th February 2009, 10:19 PM
Pauline, do you find the gapapentin makes Dylan tired?
I think it might make Ilsa tired. The neurologist told me it doesn't but our pharmacist said it often does to humans.

Maybe we should start a new thread but I read that and had to ask right away

Jen and Ilsa

Definitely and Dylan's neurologist mentions it every time we up his dose. My daughter is epileptic too and many AEDs cause tiredness.

ilsamom
27th February 2009, 10:43 PM
THANK YOU!!!!!!!! You have probably saved the last bit of my sanity!!!! Our neurologist told me it was impossible, but I've never been happy with him. I couldn't tell if she was in pain or drugged, as she doesn't show pain just won't move. I had blood work done, her heart checked and everything. Although, sometimes I skip her evening dose as a test and I don't see any great improvement in her energy or any change at all.

Tomorrow, maybe for a week ,I'll give her her morning dose late if she's not in pain and see if we have a real morning walk like we used to have. If so we have to have the surgery to at least try to get her off these things. I can't stand watching her like this and I've been wondering if she had too much or not enough medicine.


Jen

*Pauline*
27th February 2009, 10:47 PM
As far as I know, dogs after the decompression surgery are on the same drugs as before.

I must add that when my daughter decided to come off her AEDs on a trial to see if she had grown out of her epilepsy, it took three years to wean her off them, a reduction of 50mg each 3 months. A missed pill by accident is one thing, but changing or missing doses is not to taken lightly.

ilsamom
27th February 2009, 10:58 PM
I know, but some dogs are able to reduce quite a bit. It is our only chance. And if not at least we hopefully won't have to increase the dose and make it even worse. You can't imagine how terrible she seems sometimes, so lethargic and withdrawn. She hasn't been herself for months and it breaks my heart.

I hope she's more active without - then I'll know she's not acting like this because she's in pain.
Jen and Ilsa

tupup
28th February 2009, 09:43 PM
i hope you get a good result for Leo on monday-good luck. my ruby was at the groomers today & that was bad enough; her not being with me for 1 1/2hrs!the whole place kind of echoes without her. i hope you get him home soon..

Karlin
28th February 2009, 10:07 PM
You can't imagine how terrible she seems sometimes, so lethargic and withdrawn. She hasn't been herself for months and it breaks my heart.

To be honest, this doesn't sound like anything due to gabapentin. It sounds like something related to the level of pain and discomfort she is in from the SM. I might be wondering if she actually needed an *increase* in dosage from that description. Gabapentin can make dogs a bit sleepy but any human sufferer will tell you the sleepiness is preferable to the pain. Dogs with this generally get withdrawn due to pain, not due to sleepiness from drugs. While there is a chance that perhaps the gabapentin is having some affect of this sort I'd really want to have her pain level investigated and evaluated.

As Pauline says most dogs continue on gabapentin all their lives post surgery; and usually at pretty much the same dose as far as I have ever seen. There are other options besides gabapentin however.

I think given your description I'd be seriously talking to the neurologist about options. Be aware too that if you are considering surgery, postponing it tends to allow things to worsen in an irreversible way which raises the chance she will always need drugs for pain, and the longer the delay, the less successful the surgery is likely to be, according to neurologists.

ilsamom
28th February 2009, 10:26 PM
Thanks Karlin

We saw the neurologist last week and he told me she had no more neurological damage or pain in her neck. He is an SM specialist and he told me her lethargy was not her SM or her medications. I told him we'd had her bloodwork done, an untrasound on her heart and stomach, (her usual yearly) and there was nothing else wrong with her. She doesn't appear to be in any pain or discomfort, even if I touch her neck. The lethargy came on so suddenly over a month ago - is it possible that SM can cause such rapid and odd symptoms?

I do agree with you as SM and pain is the most likely cause, but my neuro seemed so sure it put doubts in my mind. If I was sure that she was in pain severe enough to make her this tired I'd have the surgery soon.

Jen and Ilsa

ilsamom
28th February 2009, 10:30 PM
There are other options besides gabapentin however.

I think given your description I'd be seriously talking to the neurologist about options. Be aware too that if you are considering surgery, postponing it tends to allow things to worsen in an irreversible way which raises the chance she will always need drugs for pain, and the longer the delay, the less successful the surgery is likely to be, according to neurologists.

What other options are there?

I tried discussing the surgery with him as I've already spoken to Dr Marino about it, and he strongly advised against it. I asked for another MRI and he said it was too soon. Needless to say I'm unhappy with him, but he was the only SM specialist I could find here.

Thanks again
Jen and Ilsa

meljoy
28th February 2009, 11:38 PM
Still no change in news with Leo. The vet called today to reasure me he's ok and say they still intend to MRI him monday.

We went to London today to see a show which helped take our minds off it but of course we came home to an empty house.

I cant believe its taken this long. I really thought we'd take him for a scan last wednesday...get the results and then treat if need be!

Mel:(

*Pauline*
1st March 2009, 12:19 AM
Nearly there Mel, not too much longer. Hope you enjoyed the show and enjoy the christening tomorrow.

harleyfarley
1st March 2009, 10:30 AM
This must be nerve racking, ive been comeing on here several times a day hopeing there is some news on leo, so god knows how your feeling, I really hope they do the scan on Monday, its been a long time comeing, if they had scanned him earlier at least we would all know by now.

Margaret C
1st March 2009, 07:25 PM
Still no change in news with Leo. The vet called today to reasure me he's ok and say they still intend to MRI him monday.

We went to London today to see a show which helped take our minds off it but of course we came home to an empty house.

I cant believe its taken this long. I really thought we'd take him for a scan last wednesday...get the results and then treat if need be!

Mel:(

I am puzzled as to why Leo has been kept for so long without anything being done, and at the explanation which seems to be that the vet is observing him?
It does seem hard on you, your children, and Leo to prolong his stay and leave you waiting so many days for a diagnosis.

Is this part of a new trial, because five days of boarding at a veterinary centre would be an expensive exercise?
I know your vet spoke to you about a trial, and the only trial that I know anything about was one at RVC about a year ago.
I was told by the Clinical Investigation nurses that they had finished recruiting a long time ago.

I hope they the vet dealing with Leo gets on with things & that he is back with you soon.

Margaret C

meljoy
1st March 2009, 08:46 PM
Hi.
Margaret. The reason the vet has given for the long observation is he feels many many Cavaliers will show Syrinxs if scanned. He said if Leo showed a syrinx it would be too easy to blame that for his screaming fit 2 weeks ago. As Leo is only 2 he wouldnt want to commence him on drugs if the cause of his distress was infact something else. Does this make sense?

Its been so hard and there have been many tears....both mine and the children. The vet called today again to say Leo was fine and had been out for a few walks and they had bathed him this afternoon. He had tolerated that fine with no signs of distress.

The plan is still to MRI him tomorrow then they'll call me and let me know. This has been such a long week and Im glad we have had a busy weekend.

The support here is fantastic.....Thank you.
Will post more when I know.

Mel:(

meljoy
2nd March 2009, 07:54 PM
UPDATE!!!

This is unbelievable but the a young student vet called about 20 minutes ago to tell me Leo DIDNT get the MRI today as there was a problem with the scanner and he's booked in for 9am tomorrow!

I think my reaction scarred the poor chap! It would have been nice to have let me know earlier as we've been on tender hooks all day. Anyway I told him I wanted to collect Leo tomorrow regardless, he went and asked his boss who has agreed. They have appologised and promise to call me with the results tomorrow lunch time and then I have an appointment with the neurologist at 4pm.

I am so sick with the waiting my stress levels are through the roof.

Once again I will post more when I know.

Mel:confused::bang:

*Pauline*
2nd March 2009, 07:58 PM
Now I'm starting to think they are making the most out of your insurance! :confused: It will cost a fortune to have him on observation for so long.

jasperpaw
2nd March 2009, 08:03 PM
So sorry you have had to go through all this `waiting game` yet again - you must be at the end of your teather with it all, as you say you would have thought they could have let you know about the scanner they must be aware you are worried sick.

sins
2nd March 2009, 09:13 PM
This is ridiculous, I know it's a teaching hospital etc.. but you've just left a much loved family pet there for a diagnostic procedure NOT donated him to science! You're absolutely right to demand him back tomorrow.
Sins

meljoy
2nd March 2009, 10:14 PM
Thanks Sins......Im glad Im not just being hysterical by demanding him back. I think Pauline might have a point that its a money making scheme from the insurance!

All I care about now is getting my boy home and of course getting a diagnosis........although that makes me feel sick to my stomach.

Mel:(

tilly
2nd March 2009, 10:35 PM
Hi Mel,

I am so sorry to hear how long this is taking. It must be a nightmare, they only took Tilly in for one night to observe and did the MRI the next day. I hope that all goes well for tomorrow.

Much love

Sam and Tills

diddy
2nd March 2009, 10:59 PM
Hi Mel
I can well understand your frustration that things are going at a crawl, especially when it was supposed to be just for 24 hours or so. I am becoming a little bit suspicious that they are pushing their luck in dragging this out for so long. Everything crossed for him tomorrow. Hang on in there. Wishing you all the best, will be thinking of you
Diddy

harleyfarley
3rd March 2009, 12:33 PM
I should think they will keep him for nothing (laugh) after all its not your fault the scanners broke, I think i would have said forget it, except he will have to go through this again, im livid. di