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murphy's mum
10th October 2011, 08:30 AM
We have Misty's appointment in Glasgow, for her consultation today, and possibly her MRI, as long as there are no emergencies. We've fed Murphy as normal, so we're getting the bashed puppy look from Misty, the girl does love her food, and can't understand why we're not giving her any.

We've to be there for 11:30, so that's four hours away, but we'll be leaving in about an hour and a half to travel up. I've written all her symptoms down, got her claims form and insurance, and packed her fuzzy throw to bring her home with. I feel exhausted already, needless to say I never slept much last night, and I'm a little uptight, but once we've set off I think I'll feel better.

Murphys staying with his 'Nana' while were away today, so I know he'll be in good hands, so at least there's one thing less to worry about. My MIL has just retired so her parting words on Saturday were, "if the curtains are closed just send him upstairs" :grin:

Thank you all for your continued support, and I'll check in later :)

BrooklynMom
10th October 2011, 08:43 AM
I know how exhausting this part of the journey is...it is like running a marathon before a big race, so hard. I will be thinking of you and Misty today and sending all of my prays to you for your long journey. Hang in there and keep us updated. BIG HUGS :hug:

sarahsum
10th October 2011, 09:48 AM
Good luck little Misty, hope you get good news xx

ByFloSin
10th October 2011, 09:53 AM
I know you will have left for the drive to Glasgow by now, but I just want you to know that I will be thinking of you and Misty and hoping to hear some good news. If not - there are many different treatments available, which can make a vast difference.:)

Sabby
10th October 2011, 10:31 AM
I am thinking of you today. Only to many of us know what you are feeling right now. Hope that the outcome is a good one.

Brian M
10th October 2011, 10:45 AM
Hi

Good luck Misty.

sins
10th October 2011, 10:48 AM
Very best of luck today.I know you'll be very glad to get this part over and done with.
Sins

Margaret C
10th October 2011, 11:04 AM
Thinking of you & Misty today.

murphy's mum
10th October 2011, 03:48 PM
Well that's the OH and I home, but we had to leave Misty overnight. They were just too busy with emergencies to do everything today.

We saw Allison Haley, a very nice American lady. She said Misty doesn't seem to be fully aware of her hindlegs, and shows less strength in her front right leg than normal too. She showed no sign of pain during the neck/head exam, but due to the symptoms I had listed, she was concerned. She said there are three possible causes, the first being SM/CM, the second, a problem with her discs, and thirdly, an inflammatory condition. There is also a small chance it could be cancer, but she said that was well down her list, which I am grateful to hear.

So we left Misty in the hands of three nice students, who were going to take her away and give her a snack, which will earn them Misty's ever lasting love I'm sure. She will get full blood work taken tomorrow, an MRI and then a spinal tap whilst still under GA. We've just to wait on a phone call to go back up and get her.

sins
10th October 2011, 03:52 PM
That's good..I'm sure you'll miss her dreadfully overnight,but they seem to be very thorough and determined to identify the root cause of her problems.
I bet they just love her and no doubt will take great care of her.
Sins

Love my Cavaliers
10th October 2011, 04:40 PM
I've found that whenever a cavalier has had to stay overnight at a vets or a hospital that they quickly work their magic on the staff and are hardly ever left alone. Misty should be a happy girl for the rest of the day and she's got her fuzzy throw to sleep with tonight.

I'll be thinking of you and anxiously awaiting (with the rest of CavalierTalk) her results tomorrow. Good luck. Hope you get some sleep tonight.

murphy's mum
10th October 2011, 08:19 PM
It's very strange being home without her, not that Murphy seems fussed at all, he's claimed his Mum's lap back, and the OH is being shunned for a change:cool: I'll be glad to get her home again, but I know she's in good hands, so I'm not worrying about her, just missing her.

Sydneys Mom
10th October 2011, 08:30 PM
Keeping Misty in my thoughts.

BrooklynMom
10th October 2011, 10:47 PM
Thinking about Misty and sending her my prayers. It must have been hard to leave her, but it will be over in no time and I am sure you will be happy to have all of those tests done once they are. The waiting game is never an easy one though! I will be thinking of you!

Karen and Ruby
10th October 2011, 11:02 PM
Wishing you well for tomorrow- Unfortunetly there are too many off us that know exactly how you are feeling!

I hope you get the answers you need tomorrow so that you can got Misty on to the correct treatment and care!!

ByFloSin
10th October 2011, 11:57 PM
I have been thinking of you and Misty all day but not had time to catch up with this thread until now. I am sorry Misty has to stay overnight because they have had too much emergency work to do to complete all the tests today. I am also sorry to say I understand only too well the time taken up and the valuable and life saving work these referral services undertake because when Holly was a tiny puppy she was one of them and her life was saved by the emergency treatment she was given at The Willows.

From what you say I think the American lady is looking at all the right things and has got her possibilities and priorities just right. Let's wait to hear what tomorrow's test results show. Meanwhile, you are in my thoughts and prayers.

murphy's mum
11th October 2011, 01:52 PM
Well it seems my worse fears have now been confirmed :(

Misty went for her MRI at 10am this morning, they called at 0830 to say she'd been really good overnight and to let me know she was going in.

Someone has just called back, to let me know that the MRI has confirmed SM. Her English was a little hard to understand, but I think she said a malformation ran the full length of her spin. Allison isn't in until 1600, so we have to wait until then to pick her up, so I'll get all the details then.

I'm now dying to get my little angel back in my arms.

murphy's mum
11th October 2011, 02:08 PM
We'll be leaving in an hour and a half to pick her up, but in the mean time can anyone think of anything I should ask Allison about while I'm there? :?

EDIT: Allison is now in, so heading out now!

Sabby
11th October 2011, 02:24 PM
I am so sorry to hear about Misty’s outcome but I think it was a bit naughty for someone (not the neurologist) to ring you and just give you this bit of news without anything else. My vet done the same said it was the worse he has seen and then when I saw Clare it was not as bad as he told me. So wait and see until you see the neurologist to see how bad it really is. Obviously you need to talk about medication. Don’t know if Zitac will be a choice as this is for preventing SM from getting worse.

I have written about the insurance claim seperate.
When you pick up Misty tell them to email the invoice to petclaims@bdml.co.uk no seperate form needed. Just make sure it says PRE AUTHORAUSATION.

Sabby
11th October 2011, 02:25 PM
Just a little bit of advice in regards to your pre Authorisation.
I have been on the phone with AXA 3 times this morning. I am chasing the pre authorisation as I am worried that if it takes too long my vet wonít allow any more Pre Authorisation in the future. I was told today that all of a sudden the invoice my vet faxed to AXA doesnít show on the computer. Well to cut a long story short, after talking to yet another claims adviser the invoice is showing on the computer but because the difference between the original figure and the end figure is £6.76 AXA got confused and started processing the Pre Authorisation as a normal claim. How convenient.

Also Brian an update !!!! They are now working on claims received 17 th August. We are lucky to have any money by the end of October. And if you want to complain you have to write to AXA first, if their complaints department donít deal with the complaint satisfactory then you need to complain to the Head Office and only after that you can go to the Ombudsman.

Karen and Ruby
11th October 2011, 02:28 PM
We'll be leaving in an hour and a half to pick her up, but in the mean time can anyone think of anything I should ask Allison about while I'm there? :?

Hi there,

I'm so so sorry you have had this confirmed- you must be in bits and I understand exactly how you feel. Until you see the pictures and talk to Alison you can't know the full extent of the damage.

You will find that you discuss Medication vs Surgery. Medication can be very effective, I can't remember how old Misty is but have a gut feeling she is a little bit older??

A long thin Syrinx can be better for a dog than a short wide one.

I would get all the information you can while you are there regarding how far the disease has progressed so far and what Allison feels her best options are.

All you need to do is get her comfortable, pain free and mantain a good quality of life.

Dont go alone- I did and it was one of the most horrendous experiences of my life. I couldn't drive when I picked Ruby up as I was in such a state (this was back before I joined this forum) I was lost and had no clue what I was dealing with.
I sat in my car and cried for an hour before I could turn the engine on.


One of the best things I can say to you is that Misty doesn't know what has just happened and never will- her life will be back to sniffs, walks, food and sleep which is no different to what it was two days ago.

All you can do is get all the info, take it home and discuss it with your family, friends and people close to you and make a desision that suits you, Misty and your life.

sarahsum
11th October 2011, 03:12 PM
My Blue has one of the worse MRI results both vets I have been to have seen, in places in his neck he has hardly any healthy cord showing, they both say it is a miracle that he is able to walk...yet today he is bouncing around our warehouse with a burst football in his mouth...no matter what the scan says its how your dog presents clinical symptoms that is more important, and that you get the right treatment. Lots of love & TLC works wonders!! :hug:

murphy's mum
11th October 2011, 05:51 PM
We're just leaving Glasgow now, the traffic is terrible, I'm so glad we don't live in a city.

Allison has confirmed the syrinx does run nearly the full length of her spine. It does stop and then restart in a couple of places, the one nearest her head is very long. However, Allison is happy to only start her on Gabapentin three times a day. She was very surprised as Mistys clinical symptoms aren't really that severe. She want to speak to us in four weeks to see how Misty is doing. She said if three doses of Gabapentin make Misty too dopey, we can try reducing to two.

Other than that we have of course just to treat Misty the same as always, but to look out for any worsening of her symptoms. If that happens then she will need other meds added in. She didn't advised on surgery, but I whole heartedly agree with her there anyway. It wouldn't be worth putting Misty through given her symptoms.

I was shocked looking at the MRI results that Misty is so well and active. Looking at the sliced image the fluid takes up a lot of the spine. I guess we just need to be thankful that Misty is doing so well.

One thing I need to find out, is Gabapentin covered by insurance normally? This batch was included in the claim, but it was £81! Any advice on this will be appreciated.


Sent from my iPhone using Tapatalk

Tania
11th October 2011, 08:04 PM
Hi, I am just catching up. I am really sorry about this terrible news. You must be very upset. I claim for Gabapentin from my insurance company without any
problems (Petplan) Did the specialist suggest putting Misty on something like Cimetidine (Zitac), this may help to slow down the progression. Hugs to you both.
:hug:

Kate H
11th October 2011, 08:07 PM
You can get a prescription from your own vet and then buy gabapentin on the internet at a very reasonable price. I get mine from hyperdrug at £14 for a month's supply (3 x 100g daily) for Oliver - I think Margaret C found somewhere even cheaper. No doubt others will chip in with advice!

Kate, Oliver and Aled

Margaret C
11th October 2011, 08:40 PM
I'm so sorry you have had such bad news.


Karen is so right when she says........



One of the best things I can say to you is that Misty doesn't know what has just happened and never will- her life will be back to sniffs, walks, food and sleep which is no different to what it was two days ago.




I am certain that all insurances pay for SM medication, although I think that some owners with only a basic cover may find this stops after a year.


You can get a prescription from your own vet and then buy gabapentin on the internet at a very reasonable price. I get mine from hyperdrug at £14 for a month's supply (3 x 100g daily) for Oliver - I think Margaret C found somewhere even cheaper. No doubt others will chip in with advice!

Kate, Oliver and Aled

Kate is right, I did get some cheaper quotes for gabapentin but for various reasons found the suppliers unreliable and Hyperdrug always gave a really good and speedy service. Tommy is on Lyrica now and I buy it from Tesco.

murphy's mum
11th October 2011, 09:48 PM
One of the best things I can say to you is that Misty doesn't know what has just happened and never will- her life will be back to sniffs, walks, food and sleep which is no different to what it was two days ago.

This was what Allison stressed as well. We've just to keep doing what we've always done with her, if she wants to run around the field chasing her tennis ball then that's what she'll do. She wont be treated any different especially if she continues to be as active and happy as she is now. If I hadn't been a member of CT I think her symptoms would easily have been missed. If she does get worse then we'll cross that bridge when we come to it, and work with Allison to do whats best for her.


Hi, I am just catching up. I am really sorry about this terrible news. You must be very upset. I claim for Gabapentin from my insurance company without any
problems (Petplan) Did the specialist suggest putting Misty on something like Cimetidine (Zitac), this may help to slow down the progression. Hugs to you both.
:hug:

She didn't, she said as her clinical symptoms weren't bad, she would prefer to just try Gabapentin first, due to the side effects caused by long term use of some others.

Kate and Margaret, thanks, I'll check out Hyperdrug now, and speak to AXA about how to go about claiming for it.

Kate H
11th October 2011, 10:13 PM
Any dose of gabapentin can make dogs sleepy to start with, until the body adjusts, so don't cut down from 3 to 2 too quickly - most dogs seem to do better on three times a day.

It doesn't seem to be the length of the syrinx which causes the most problems, but its width - so it sounds as if Misty's is still narrow. Long may that continue!

Kate, Oliver and Aled

murphy's mum
11th October 2011, 11:19 PM
Thanks for that tip Kate, we've given her her first dose now. So we'll make sure we give her time to adjust to it :)

murphy's mum
12th October 2011, 06:54 PM
Allison just emailed though some of Misty's MRI, she couldn't give us them on disk yesterday as there was technical problems. She's sent through three side on ones, but none showing the slices of the spine straight on.

http://i145.photobucket.com/albums/r215/icklp360/Our%20Life/GILLESPIEMISTY_Se100_Im007.jpg
http://i145.photobucket.com/albums/r215/icklp360/Our%20Life/GILLESPIEMISTY_Se104_Im007.jpg
http://i145.photobucket.com/albums/r215/icklp360/Our%20Life/GILLESPIEMISTY_Se105_Im007.jpg

sins
12th October 2011, 07:25 PM
Thanks for sharing the images.I know it can't be easy for you at the moment.
When you feel up to it,perhaps send a copy of those to your original vet...
You've been through some hard battles on Misty's behalf.
Well done for being so determined to get her correctly diagnosed.
Sins

Sandrac
12th October 2011, 08:43 PM
So sorry to hear that you have joined the ever growing club! However, we are all here to support and help each other and I for one have found it invaluable. Like you without reading everyone's story I would have continued putting Minnie's "funny" behaviours down to her just being Minnie. Once Misty is settled on her medication you should find an immense difference in her.

As to getting the Gabapentin - I found Tesco's was the best with a prescription from my vet.

ByFloSin
12th October 2011, 10:08 PM
So sorry to hear that you have joined the ever growing club! However, we are all here to support and help each other and I for one have found it invaluable. Like you without reading everyone's story I would have continued putting Minnie's "funny" behaviours down to her just being Minnie. Once Misty is settled on her medication you should find an immense difference in her.

As to getting the Gabapentin - I found Tesco's was the best with a prescription from my vet.

Well said Sandra. I think Rebel was photophobic for several months before I realised his SM had become symptomatic. It because he could hardly walk more than a step or two and started howling with pain that I realised what was going on and rushed him to see the vet. Frusemide has stopped all that and he looks years younger without the pained expression on his face.

I'm surprised that you can get Gabapentin on veterinary presctiption from Tesco's pharmacy. One day when I was shopping and in a hurry I asked for some Lacrilube from my local TP. The assistant asked if I had used it before. Not knowing any better I told her it was for my dog's dry eye. She was very nice, but told me she shouldn't have sold it to me for an animal, as they aren't a licensed veterinary pharmacy!

I had a much worse incident when I went into a large Boots branch for the same stuff. It turned out that the pharmacist lives across the road from me. She asked if it was for 'that deformed dog of yours' (Holly P). When I said it was she asked me to leave.:o She's a horrible woman anyway, who nobody likes, but I learned my lesson and now pretend the ointment is for my own personal use.:roll: