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Jen
23rd February 2006, 12:45 AM
Please keep Abbey in your thoughts, she has her MRI next Thursday, March 2nd. We're still hoping this is PSOM rather than SM, but I guess we'll have our answer soon enough.

Moviedust
23rd February 2006, 12:52 AM
Ohhh GOOD LUCK!!

Sally
23rd February 2006, 04:02 AM
Keeping fingers crossed and sending positive thoughts, Jen.

Claire
23rd February 2006, 10:47 AM
Fingers and paws crossed for good news..... :?

Karlin
23rd February 2006, 11:19 AM
Good luck; I am so glad you have your day set now.

Alison_Leighfield
24th February 2006, 08:03 PM
Will be thinking of you both, fingers crossed.

Alison xxx

rory
24th February 2006, 09:12 PM
Hoping all goes well. Either way, it will be a relief to finally have an answer...

Cathy T
25th February 2006, 03:05 AM
Fingers crossed. It will be nice though to get a definitive answer.

Jo B
25th February 2006, 01:47 PM
Fingers and paws crossed here for you

waiting is the worst part icon_flowers

fuzzie bear
25th February 2006, 07:28 PM
Me and all my 4 babies have our fingers and paws crossed for your little baby....

Nicki
25th February 2006, 09:55 PM
Paws and fingers crossed here too Jen, thinking of you and Abbey and sending postiive thoughts.

Rippleoak
26th February 2006, 03:31 PM
Good Luck, Jen! Chad and Mylee, my two youngsters, had theirs on thursday at Cambridge. I know exactly how you are feeling!

Michelle

rory
26th February 2006, 06:36 PM
Rippleoak - How did it go?

Rippleoak
26th February 2006, 06:45 PM
message

rory
26th February 2006, 06:56 PM
:( I hope Chad is OK. What a relief that neither show SM!

Hydrocephalus has been associated w/ SM or COMS (the skull malformation) in some cases that I am aware of. It makes sense if you think about what's going on. The brain is too big for the skull so it squishes out the back. The norrmal flow of CSF is disrupted and/or blocked. That is theoretically what causes SM. But this could also cause hydrocephalus if the fluid backs up into the skull (vs into the spinal cord like in SM).

When I took neurology last year, I couldn't understand why sometimes SM would occur and sometimes hydrocephalus. The neurologist/professoor didn't give me an answer I was happy with, either.

Anyway - it sounds like he has adapted well and doesn't have any problems, which is great! Sometimes it can be an incidental finding. A professor this year told us about a study they did where they MRId the top 10% scoring children in an IQ test and found 4 or 5 had hydrocephalus with significant brain matter lost and no symptoms! (And obviously very intelligent, also!) The brain is very adaptable. It's pretty amazing.

Nicki
26th February 2006, 07:08 PM
I'm so pleased about Mylee's result, Michelle, that's great news.

Sorry that it wasn't so good for Chad - paws and fingers crossed for him, please let us know when you have some more news. Will be a very difficult few days for you, sending love and ((((hugs))))

Rippleoak
26th February 2006, 07:21 PM
I'm so pleased about Mylee's result, Michelle, that's great news.

Sorry that it wasn't so good for Chad - paws and fingers crossed for him, please let us know when you have some more news. Will be a very difficult few days for you, sending love and ((((hugs))))

I am ok with the results. I am hoping the full results come through quickly. The good news is that no one has told Chad that there is anything wrong :lol: I am still hopeful for a good grade for him, although he will not be used at stud now anyway.

Jen
2nd March 2006, 08:51 PM
The results from the MRI came back clear, for the most part...
She has the malformation, but Dr. McVey didn't see any signs of SM--as in, the brain wasn't protruding out of the malformation. He also didn't see any sign of PSOM. He's passing her film onto a radiologist for a 2nd opinion, and he'll then call us later today or tomorrow morning.
Overall, it's good news, but yet we still don't have any answers as to her behaviors. Once the radiologist report is back, we'll then discuss how we want to move forward in terms of keeping her on Lasix or taking her off to see what happens. I ordered a copy of the film and it should be ready for me tomorrow, and I'd like to have a few others look at it as well.

She had a difficult time during the procedure--at one point towards the end she stopped breathing and she also puked afterwards when she was waking up. I've just been staring at her all afternoon, I'm so happy to have her home that I really don't care just what it is we're dealing with anymore.

Cathy T
2nd March 2006, 10:37 PM
The good news is that no one has told Chad that there is anything wrong :lol:

Just don't tell him :)

Jen - well, some mixed news there huh? It's wonderful that you aren't seeing sm but at the same time what is going on?!

I know you'll keep us informed. Thinking of you.

Karlin
3rd March 2006, 02:25 AM
I think overall that is a result to be relieved about with some more exploring to be done. It is frustrating not to get some clear explanations but at the same time, what a relief not to have syrinxes showing on the MRI. icon_flowers

I can imagine that you are just enjoying having her there right now; she has been through a lot, little thing!

Jen
6th March 2006, 05:04 PM
Yes, we're relieved there are no syrinxes, but we're still plugging away for some answers. At this point, she has the malformation, no syrinxes, but still shows symptoms. Dr. Clare Rusbridge has seen cases like this, which means there is something more to SM than just the malformation that can lead to the herniated brain blocking the normal CSF fluid which then creates the syrinxes. She feels it may have something to do with the velocity of the CSF fluid, which would make sense considering we've seen results in terms of less symptoms with Abbey since she's been on Lasix.
Once we get the images back this week, I plan to send them to Clare to have her review them.

Once again, it shows how difficult this disease is in terms of not every case is cookie-cutter and that there is more to it than scratching--not all dogs even have that as a symptom. We've thought about looking at allergies again, but yet we're most concerned about is her front leg trembling and her yelping for no reason, both which would not be allergy-based and the reason as to why we're still concerned about just what it is we're dealing with.

Jen
13th March 2006, 08:29 PM
Clare got back to us, and agrees with our neuro that there is no sign of SM, however, she feels the malformation is obstructing the CSF flow enough to cause the symptoms we're seeing. She's suggests keeping Abbey on Furosemide (Lasix) long term or considering surgery. Right now we give Furosemide only 1/day, we're bumping it up to 2/day per Clare's protocol. We'll go from there, hopefully this will help.

Karlin
14th March 2006, 12:58 AM
Are you giving 2 of the 20mg tablets then? Or rather one whole tablet as usually you give 1/2?

Jen
14th March 2006, 02:40 AM
That's what I don't understand, she's on Frusomide but it's 12.5 mg 1/day. Everyone I speak with says it only comes in 10mg tablets :?

Karlin
14th March 2006, 02:59 AM
It probably depends on the manufacturer as there are generics. I just checked and mine are 20mg tablets and I give one half of those.

rory
14th March 2006, 03:15 AM
I have 20mg tablets. I give 1/2 twice a day.

Nicki
14th March 2006, 09:30 PM
Jen, I'm so sorry about Abbey's results - also that she had such a difficult time.

It's very hard when the results aren't clear, thank you for sharing this with us as I have learnt more about SM from it.

Sending healing thoughts and prayers, and big hugs for you both.

The daily dosage of Frusemide seems to vary a lot - between 10 and 25 mg? The tablets we have are 40mg {they are human tablets and were for Peaches' MVD, she was on 20mg too}.

Linda
16th March 2006, 04:53 AM
Jen

I am sorry to hear that you really don't have anymore answers in
regards to Abby.
I am not one to offer much advice, but please know that I do think
of her and also keep her in my prayers.
God Bless Both of you.

Jen
16th March 2006, 07:45 PM
Thanks for your thoughts. We do feel better after Clare got back to us (see my earlier post above), as we now have some answers and a plan of how to move forward. We're just taking it one day at a time and enjoying her as much as possible. She's a very happy little girl :D