This is so interesting to me, because I am convinced Abbey's lower back issues and her SM symptoms are related. The neuro at the U said it's unlikely they are, but I've read cases like this where the syrinxes are not in the typical neck region but lower down the spine. Having read this, I am leary that this Dr doesn't see the connection or is skeptical that her symptoms and her lower back issues are related. He found this sensitive area when she was standing, he ran his hands down her spine, pushing on areas to see if she'd react. When he came to the spot right before her hips she'd go into a sit positon when he'd put pressure on this area. She didn't wince, didn't look back at him, who knows if sitting was what she thought he wanted her to do, but she did it three times during the exam. Given this, he feels she may have some sensitivity in this area, which is why we're starting with a lumbar xray before we MRI.
Maxx's Mom wrote: If we'd only had the partial MRI done they would never have found Maxx's syrinx's as they are right at the base of his spine. te: