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Thread: Chiara malformation in humans

  1. #1
    Join Date
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    Default Chiara malformation in humans

    My husband's ex secretary, a wonderful young lady with two small children just found out she has this. Because we have researched it in Cavaliers, we were obviously heartbroken thinking of the pain she must have. I posted about this on the other board and someone told me there was an article on this board about it. Can anyone point me in the right direction? I did search, but could find nothing. I have found asap.com which I am going to forward to her.
    Pam
    Pam
    Mummy to Miss Madeleine born 9/1/2006

  2. #2
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    Pam, I think this might have been the article I was referring to:

    http://board.cavaliertalk.com/showth...ghlight=chiari
    Lani
    (a.k.a. Lucky's & Sparky's mom!)

  3. #3
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    I am sorry to hear of her diagnosis. ASAP is a great organisation.

    This is also an excellent site with lots of articles and info on research, written in an easily understandable way:

    http://www.conquerchiari.org/index.htm

    The Ann Conroy Trust is a major UK Chiari/SM organisation and their website might be helpful:

    http://www.theannconroytrust.org.uk/
    Karlin
    Cavaliers: Jaspar Leo Lily Tansy Libby (foster) Mindy (foster)
    In memory: Lucy
    Cavalier SM Infosite:www.smcavaliers.com

  4. #4
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    There is a young woman in my town who has chiaria malformation. Here is an article from the local paper:

    http://www.wickedlocal.com/wrentham/...ory-to-educate

  5. #5
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    Thank you I have sent along the Wrentham article. We live in Southern NH so very close to that area. We go to the outlet mall there sometimes.
    I have also sent the websites.
    Pam
    Pam
    Mummy to Miss Madeleine born 9/1/2006

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