Who did surgery and where exactly?
Dr. Curtis Dewey, Cornell University Ithaca, NY 2/21/2007
Why did you choose surgery?
My Molly was 21 months old and her only symptom was left sided neck scratching. An MRI revealed a large syrinx. With the titanium mesh procedure we were hoping to halt progression. We knew the statistics going in but we made the decision based on the belief that we would end up on the good side of those statistics.
What was the outcome?
Molly had post operative pain complications that required extensive procedures including, MRI, CAT Scan, accupunture, and various meds.
Recovery time was 4-5 months. Unfortunately despite our efforts the disease has been slowly progressing over the last two years. Molly has sensitiviy that encompasses the left side of her neck, shoulder, chest and most recently her left back hind quarter. She has a slight head tilt and can no longer wear a harness unless that left side is "behind" her leg.
She is taking 600mg gabapentin, 10mg prilosec, and 10.25 mg or deramxx per day.
If you don't mind, what was the total cost?
Because of the post operative procedures/meds, we figured total costs were approximately $7,000. $3,000 of which was covered (with effort) by insurance. This does not include travel/meal expenses that were involved.
Any other comments?
Our goal was to halt progression of the disease which it did not, and the 4-5 months of her life that she spent in agony (she's 4 now, so that was 1/4 of her life), she'll never have back. On the other hand, we may have at least "slowed down" progression, and she would have been far worse if we hadn't proceeded with the surgery. Because of this, I try not to ask myself if it was worth it or if I would do it again, because I truthfully do not know.
Molly and Cooper's mom, Bev