I am so sorry to hear this has happened. Such a disappointment after being told that your little girl was unaffected.
I cannot understand how you could have been given such wrong information. It sounds like you were seen by someone who has no experience in reading a scan for syringomyelia.
Clare Rusbridge does sometimes review scans if there is a CD of the dicom images ( don't ask me what that means ) not just a sheet of film. There is a charge of about £35 + VAT
Cavaliers......Tommy Tuppence 2000-2012 and a half share of Faith.
Japanese Chins.... Dandy, Benny, Bridgette, Hana & Escapologist Fonzi .