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Thread: A human with Chiari Malformation, SM & EDS wrote this in our blog

  1. #1
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    Default A human with Chiari Malformation, SM & EDS wrote this in our blog

    A person wrote this in our--Abbey's blog and I even had a post for months asking for this person to e-mail me as I would love to talk to her in detail. I finally took the post off as obviously she went to our blog just once and never came back. I have read her last paragraph many times with comfort.
    -----------------------

    I also have SM. Mine came with Chiari Malformation
    (CM)and Ehlers-Danlos syndrome(EDS). I have had
    successful brain and spinal cord surgeries to help
    alleviate some of the awful symptoms.

    If anyone wants to know what their dog with SM is
    feeling, they can ask a human who has the same
    condition. There are thousands of us with various
    combinations of CM, SM, and EDS, and we have very
    informative online support groups called Chiari
    Connection International (CCI), Chiari-
    Syrinomyelia Foundation (CSF), and American
    Syringomyelia Alliance Project (ASAP).

    We are indebted to the docs who are studying
    Cavalier spaniels, because their discoveries help
    humans, too. I encourage anyone with a dog who is
    affected by SM or CM to contact the human groups
    to share info.

    Good luck with your sweet dog; I hope she can get
    some relief that will enable her to enjoy a more
    comfortable life. But please know -- even if she
    looks very uncomfortable -- that she is happiest
    being alive and with her family.
    Linda, Georgia, USA
    Winston--shih tzu-male, Darby female tri, Bentley male blenheim and Chelsea, black-tan
    Abbey my beloved tri who is so embedded in my heart--RIP Sweet Princess

  2. #2
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    What a generous post for that person to share on your blog.
    Lani
    (a.k.a. Lucky's & Sparky's mom!)

  3. #3
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    A very thoughtful post.
    Karlin
    Cavaliers: Jaspar Lily Tansy Libby Mindy
    In memory: Lucy Leo
    Cavalier SM Information site:www.smcavaliers.com

  4. #4
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    My close friends daughter (Rebecca) had cm. Rebecca had suffered severe headaches for years. Her brother was killed in a Motorcycle Accident about two years ago (aged 25). When they did the Post-mortem they discovered he had cm. It was then recommended Rebecca had a scan. Then of course she was diagnosed. On Friday she received the final all clear and was told they had removed something like three inches of skull. During the recovery period Rebecca was rushed into hospital about 4 times and had to have lumbar punctures. Now she is leading a normal life.
    Tania and The Three Cavaliers!
    Dotty!- A Sweet Little Tri
    Molly - Pretty Tri Dougall - Gorgeous Blenheim

  5. #5
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    Sorry, I missed the point, The Surgeon commented the research and treatment on Dogs is more advanced than humans and he himself was quite interested in the cm condition in dogs.
    Tania and The Three Cavaliers!
    Dotty!- A Sweet Little Tri
    Molly - Pretty Tri Dougall - Gorgeous Blenheim

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