Lucille - my Oliver is a 9 year old blenheim without papers and Clare Rusbridge still welcomed his MRI results. He scanned clear for SM. He was having a scan for ruptured cervical discs and also to see if any of his symptoms could be related to SM. Thankfully not!! So maybe if you can't scan for Rupert's Fund you can still do the genome study with Clare and Penny Knowler. I sent Oliver's DNA to Penny in Canada. Worth checking out.