Luka's discharge paperwork came and it basically states the following:
Luka's first syrinx spans C1-C7 the entire cervical spine, there is one in the top middle thoracic cord, the is one at the spine, and 3 small dialations at the top of the lumbar spine. There is a dilation of the ventricles, mild crowding of the cerebellum and a slight medullary kink.
Those of you who have had experience with this disease, I am thinking that with this extensive damage to his spinal cord it is not a benefit to do surgery because even if they shunt the two large areas he will still have to take an extensive drug regiment.
Also Dr Kline says that he could still have a few years, those of you who have gone through this what should I expect- what is a reasonable lifespan for Luka?
I don't think accupuncture would be benefitial to him because there is so much damage to the entire spine.