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Thread: University of Florida Low Cost MRI-- 2 thumbs up!

  1. #11
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    Quote Originally Posted by RodRussell View Post
    Dr. Schubert spoke at the ACKCSC national show in Orlando last year, was treated very respectfully by all in attendence, and told us about his mini-scan deal, plus his use of LactoSorb SE mesh -- a biodegradable polymer mesh designed to resorb by hydrolysis within a year -- instead of titanium mesh.

    Holly, did he mention this alternative mesh to titanium?
    Rod-- he told me that he had spoken at the National and that he was well-received. He did not mention the alternate mesh. He wants to use the titanium mesh with her. I asked him about the swine tissue but he didn't seem too impressed by it.

    I am really undecided about doing the surgery, as the outcome is so uncertain. She has a lot of damage to the spinal cord which can't be reversed. His hope is that he will prevent more damage but she will still need meds. He was very surprised that her symptoms are so minimal. Her medication really controls them and I am vigilant about adding more when needed. I have learned her triggers and medicate accordingly. We are on the low end of meds, so lots of wiggle room there, as needed.
    Holly, Oliver, Rosalita, and Scarlett

  2. #12
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    Quote Originally Posted by RodRussell View Post
    I believe the low cost scan is a mini-scan. The mini-scan is supposed to work because the theory is that if there is a syrinx lower down, there also will be one higher up. I don't think anyone has found a low syrinx without a higher one, too.
    That is interesting. Good to know.
    Holly, Oliver, Rosalita, and Scarlett

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    Pat always gives good advice. Scarlett is the same little girl as before and I know you will do what's best.

    I am glad dr. Sherbert was well received. Very good to hear. Is there a way to get any notes or dvd of his presentation? I think several neurologist spoke?

    Sent from my Droid using Tapatalk
    Anne Proud mother of Elton 5 and Angel Ella

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    This is such a confusing disease... I just watched a video of a friend's dog crying and scratching, yet her MRI shows absolutely no syrinx-- malformation only. She is on meds and they do help her. Yet, here is my Cavalier with a severe malformation and huge syrinx who has never once cried out and her symptoms are mild. The tech emailed and she said she looked at my dog's images which shows she is severely affected but they have less severely affected dogs with much worse symptoms.
    Holly, Oliver, Rosalita, and Scarlett

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    Quote Originally Posted by Holly View Post
    This is such a confusing disease... I just watched a video of a friend's dog crying and scratching, yet her MRI shows absolutely no syrinx-- malformation only. She is on meds and they do help her. Yet, here is my Cavalier with a severe malformation and huge syrinx who has never once cried out and her symptoms are mild. The tech emailed and she said she looked at my dog's images which shows she is severely affected but they have less severely affected dogs with much worse symptoms.
    I understand completely or understand how I don't understand. I feel for both of you

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    Anne Proud mother of Elton 5 and Angel Ella

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    Default Will be thinking of you and Scarlet....

    Sounds like you expected the news you got...somewhat. We go for our first neurology visit Friday and cost is $1200 for full MRI. Glad we have insurance!!! North Carolina State Vet School offers mini-MRIs at reduced rate but only for jogs not neutered or spayed. So only for breeding scans. Our issue here is that North Carolina State is now badly understaffed and key neurologists on extended leave. So we had to look at other recommended options much further away. I do feel very bad for those without insurance and no reduced rate MRIs.

  7. #17
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    Holly, sorry to hear about Scarlett's MRI results, however like everyone said she is still your same little girl. I too find this disease so confusing with MRI's often not matching displayed symptoms that's why it is such a personal choice as what to do for treatment (surgery vs. Meds). You know what's best for your girl.
    You mentioned Holly is not on many meds right now. Which ones does she currently take? I am always curious as to what works for some dogs, as they all react so differently to the available meds out there.
    I thank you for sharing your information, hopefully it helps others in that area get their dog(s) scanned.

    Irene-
    Jack and Penny's Mom, NYC

  8. #18
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    Quote Originally Posted by lovecavaliers View Post
    Holly, sorry to hear about Scarlett's MRI results, however like everyone said she is still your same little girl. I too find this disease so confusing with MRI's often not matching displayed symptoms that's why it is such a personal choice as what to do for treatment (surgery vs. Meds). You know what's best for your girl.
    You mentioned Holly is not on many meds right now. Which ones does she currently take? I am always curious as to what works for some dogs, as they all react so differently to the available meds out there.
    I thank you for sharing your information, hopefully it helps others in that area get their dog(s) scanned.

    She is on 100 mg Gabapentin 3/day and 10 mg of Omeprazole 1/day. If timing doesn't work out or I recognize that she's having a hard day, I will add another Gabapentin. If it is a a bad storm outside or I am going to bathe her, she gets Tramadol, as both of those things really bother her. I did have her on Previcox for a year and a half (that is an NSAID) but took her off a few months ago, as I wasn't sure it was beneficial. The neurologist suggested adding it back in, but a bit more as she was on a very small dose. I think I will do that.

    We have lots of wiggle room to go up on meds, which is a good thing. Every time she has had her bloodwork done, it's been perfect. I did consult with Dr. Jean Dodds of HemoPet in the US re: whether to supplement her liver function to be safe. Dr. Dodds said not to give her anything until or unless she has an abnormal liver function. At that point, she said SamE and Milk Thistle. It comes combined in the form of Denmarin, which you can get from your vet. She also said to use a grain-free food for her, which we were already doing.
    Holly, Oliver, Rosalita, and Scarlett

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    Holly wrote: they have less severely affected dogs with much worse symptoms.

    Perhaps labelling the severity of SM should be based on the level of the symptoms rather than the size of the syrinx. It is width of syrinx, not length, that causes the greatest damage; so a small but wide syrinx can cause more damage than a longer but thin syrinx, which does not make contact with the nerves in the walls of the spinal cord. And there seems to be an increasing recognition of the pain that can be caused by CM alone. As a syrinx is normally the result of CM, you could say that a syrinx is only one among a number of symptoms of CM - dilated ventricles is definitely another symptom, as is hydrocephalus.

    Kate, Oliver and Aled

  10. #20
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    Kate, she has a wide, long syrinx, CM, and dialated ventricles/hydrocephalus. That's why he was surprised that her symptoms are as mild as they are. Such a mystery!
    Holly, Oliver, Rosalita, and Scarlett

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