I am very familiar with the collaboration between the Canine Genetics Group at the Van Andel Research Institute and the Translational Genomics Research Institute to find the genes that cause early-onset progressive deafness in CKCSs. CavalierHealth.org has been urging its viewers to contribute cavalier DNA samples to this same team since April 2011, to find the genes causing this genetic disorder in the breed (which, incidentally, Dr. Podell first identified). See http://cavalierhealth.org/deafness.htm#Current_Research
But in THAT study, the genetic deafness study, the team's call for DNA has been from both those cavaliers suspected of hearing loss AND older cavaliers with good hearing, for "control" purposes. And, it is a lot easier for a dog's owner to suspect hearing loss than for that owner to diagnose MVD and/or SM in our breed.
I see no such discipline in this new call for DNA from a thousand cavaliers which may or may not actually have SM or MVD, regardless of if or when they have been MRI scanned for SM or ultrasounded for MVD. So, it just seems naive on someone's part, considering how careful the other gene researchers have been in verifying diagnoses of SM and verifying controls.