Quote Originally Posted by Love my Cavaliers View Post
It almost sounds like something is damaging her vestibular system - or maybe a syrinx is putting pressure on it. Riley's SM damaged her vestibular system and a lot of symptoms are similar to Lily's. Prednisone is the only drug that worked for her and it has been a miracle drug for her. She had to start on a pretty high dose - 10 mg for a time before we could cut her down to 5 mg a day and we have just cut her back to 2.5 mg a day, but she has been on it for over 4 years now. She still has days in which her balance is terrible - she has to lean against walls to walk, she has seizure like activity in which he head whips backward and her whole body goes into a backward C and she has nystagmus of the eyes, she can't jump, sometimes one step up into the house is hard, her back legs are weak and she sometimes falls over, Sometimes she can't sit up, etc
Bev, this sounds encouraging. She is on 5 mil pred 2 x per day for 7 days, and then one per day until gone. The neuro said we will take it from there when the medication is complete. Thanks for the info!