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Thread: UPDATE!! Kayleigh - screaming episode

  1. #1
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    Default UPDATE!! Kayleigh - screaming episode

    Kayleigh had a screaming episode on Friday [diagnosed by MRI with CM last August]. My husband took her to the woods for a walk with the others, he noticed she was sitting awkwardly and then she just started screaming he had to carry her back to the car, she was limp. By the time they got to the car she was moaning and whining. [Definitely not a seizure].


    She wasn't so bad by the time they got home but I gave her some pain relief and arranged a vet appointment. I was pretty sure it was the CM but wanted to get her checked over just in case. The vet agreed and was worried about her, we had a discussion about quality of life if she has more screaming episodes - if we couldn't control them we would give her her wings as we wouldn't let her suffer. My vet said they have to be in tremendous pain to scream like that, as dogs hide pain.


    Kayleigh has been quiet over the weekend, we are keeping her on restricted for a week. Obviously we are very worried about taking her out now


    The weather pressure changes will not have helped - it is so unsettled, been really hot again today but the pressure has dropped quite dramatically over the weekend.

    Hard to see her looking so miserable

    Nicki and the Cavalier Clan Our photos www.scotlandimagery.com
    Supporting www.rupertsfund.com and www.cavaliermatters.org

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    Some of you may know that Clare Rusbridge has been involved in editing a book on the human condition http://www.amazon.co.uk/Syringomyeli...4697717&sr=8-1


    Clare suggested perhaps trying Normast - this is from a chapter in the book


    <<An open pilot trial in twelve Cavalier King Charles spaniels, with MRI-confirmed syringomyelia and behavioural signs of neuropathic pain, revealed that, after two months of 150 mg palmitoylethanolamide [Normast] once daily, the owners’ subjective impression was that improvement occurred in all dogs. This improvement was seen within eight days and lasted throughout the two month observation time. There was also a suggestion of a lasting positive effect when the drug was continued long term. In some cases, when owners stopped the drug, there was a recurrence of the dogs’ pain behaviour within a few days (Keppel Hesselink 2011).>>
    Nicki and the Cavalier Clan Our photos www.scotlandimagery.com
    Supporting www.rupertsfund.com and www.cavaliermatters.org

  3. #3
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    Poor Kayleigh. I love her sweet little face in the picture. Keeping you guys and Kayleigh in my thoughts and prayers.

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    Oh Nicki, I am so sorry to hear this. I sincerely hope that this is an isolated incident and that you can get Kayleigh's pain under control. I will certainly be sending good thoughts and wishes your way.

    Let us know how she is getting on.
    Joyce - Proudly owned & loved by

    BellaMia (Aug. 30, 2012) My Beautiful Ruby Milo (Jan. 20, 2014) My Handsome Tri
    Sydney (
    April 16, 2000~April 4, 2012) Always and Forever In My Heart

  5. #5
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    Nicki, I understand only too well how alarming the screaming episodes are because my Rebel had them when he first became symptomatic for SM. It was so bad that I had to take him outside the surgery while we were waiting to see the vet because it was alarming the other dogs and cats and people kept asking what was wrong with him. He always went rigid with the pain though, but once the Frusemide started working a day or two later it all stopped.

    Would it be a good idea for Kayleigh to see a neurologist, who might be able to prescribe effective pain control? I know you don't want her to suffer unnecessarily, but do you want to give up on her without taking expert advice? I feared the worst for Rebel a few weeks ago, but then tweaked his medication and turned it all around. Today he jumped almost high enough to almost land on the kitchen worktop and Rebel is almost 10 years old.

    You are all in my thoughts and prayers.
    Warmest wishes
    Flo & the ByFloSin Cavaliers
    Rebel, Winston Alexander,Little Joe & Holly Poppet
    Birmingham, UK

  6. #6
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    Poor baby, she is so cute. Its just not fair that you can't walk your dog without bring along pain meds just in case. Sounds like you were able to get her out of pain fairly quickly. I'm sure the screaming is distressing for the other dogs too.
    Melissa
    "If you don't own a dog, at least one, there is not necessarily anything wrong with you, but there may be something wrong with your life."
    -Roger Caras

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    Oh Kayleigh, she's too young for this! I've said it before and I'll say it again, I HATE SM!
    Bev
    Oliver (blenheim, born 3/2001), Riley (black & tan, born 8/2002,), Madison (ruby, born 9/2003), and Oz (tri-color, born 7/2007)

  8. #8
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    Thanks everyone - don't worry Flo she is under the care of a neurologist and a fantastic vet, who has been learning all he can about how to manage the condition. She is on Zitac, Lyrica and an opioid...We won't give up on her until we run out of options, but we won't let her suffer either.

    I'm so sorry that Rebel has had a bad time again but it's fantastic that he is so much better - really hard to hear all these stories about our beloved companions suffering




    Kayleigh is doing a bit better, she had a short walk today [on lead] but again wasn't too bothered when Trevor took the others, she just cuddled up next to me. That is really not like her, she goes and sits by the door so you can't get out without her normally.


    I'm sure the air pressure is really affecting them all - it was 1023 millibars on Sat night and 1003 today So quite a drop.




    Clare Rusbridge has written back about Kayleigh, there is a rare complication with [human] CM/SM called drop attacks which is almost like a faint they seem aware of what is going on but can't respond. Found some stuff about it from sufferers:


    <<the blockage of CSF keeps the signals from travelling down the spinal cord and back to the brain, so when it blocks off completely the brain doesn't send the signal to stand.>>


    <<When you pass out you feel yourself going .....a distinct feeling and you feel woozy [and clammy and nauseous!] With a drop attack you feel fine and the next thing you know you are mid fall.>>


    TThis worried me but I have NEVER heard of it happening. I think it could easily be confused with a seizure though. I have been dealing with CM/SM since 1998. I think with Kayleigh what happened was that the fluid got blocked hence the extreme pain, and then the drop attack.


    I don't want to frighten people but think we need to be aware of these things so we can get help as soon as possible if something happens.
    Nicki and the Cavalier Clan Our photos www.scotlandimagery.com
    Supporting www.rupertsfund.com and www.cavaliermatters.org

  9. #9
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    hi
    poor kayleigh i feel so sorry for you all
    i do hope she feeling better soon
    sending kisses and cuddles to beautiful kayleigh

  10. #10
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    Nicki
    I am so so sorry to hear about Kayleigh. It must have been terrible for Trevor to experience that too.
    I do hope that she is doing a little better by now (I have only just seen your post), this is such a distressing condition with so many different problems!

    Sending you all hugs and please let us know how Kayleigh is getting on.
    Christine
    Spangle born 24/11/07 (Blen)
    Poppy (Blen)who went to Rainbow Bridge aged 13 and a half.

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