Sorry ive been absent, but other than being busy, Charlies MRI was cancelled 3 times, but we went today to Best in Netherlands and Charlie is 100% totally free of SM...i burst out crying of course with pure relief. All the symptoms i saw the doctor told me can just be Charlie and that sometimes knowing the symptons can make you see more than is there..but for sure there are no signs of SM. The only thing he has in a very minor heart murmour and he says that is very minor..i couldnt be happier, and i thank you for your support when i was desperate. Thank you