Even though this is not a canine foundation, it is a national organization for human sufferers. There website even has a canine section. There are walks organized all over the country. I wanted to share in case anyone wanted to participate and support our two legged friends.

"unite@night will be a one mile casual evening walk, in various locations around the country, during the month of June in 2013. This walk will bring together people who are suffering with the devastating effects of Chiari malformation, syringomyelia, and related CSF disorders.unite@night will support CSF Chapters and Co-Ops to provide education and increase awareness while funding research projects that can potentially find answers to help those who are fighting these disorders."

http://csfinfo.org/walk-information1/