Mabel's Mom
Active member
As many of you know, Mabel had her second surgery for sleep apnea/seizures on March 13. She has had her soft palette shortened, her tonsils out and her laryngeal saccules removed. We can't think of anything left to obstruct her breathing, but she starting to have sleep apnea again. She hasn't gone into a seizure since her surgery, but fear it is coming since she stops breathing in her sleep like she did before the surgery. She'll gag and wretch or crawl a little and point her nose to the ceiling and gasp for air. This can happen as often as every 10 minutes when she sleeps. The sound she makes when she does this is heartbreaking. We've tried phenobarbitol, but it made her sleep more...leading to more episodes. We are out of ideas. Has anyone seen anything like this?
We shaved her down because she was hot and panting after her episodes and it seemed to help keep her cooler. She is fine when she is awake. This only happens when she is sleeping. We appreciate any help we can get. We can't watch her suffer like this much longer.
Karin
We shaved her down because she was hot and panting after her episodes and it seemed to help keep her cooler. She is fine when she is awake. This only happens when she is sleeping. We appreciate any help we can get. We can't watch her suffer like this much longer.
Karin