Crossposted with permission.
'BG" is Brussels Griffin breeders, who are doing a LOT amongst themselves and already pushed through one research grant by showing *united club support* internationally for SM research that is also helping cavaliers.
If anyone within the clubs wishes to raise why this is NOT being funded within the US clubs, please do! If the genome research does not proceed, it may be decades before a DNA test for SM becomes a possibility, or the inheritance is understood, as it has taken several years to collect and do the preliminary work on the DNA that is ready for this research (about half a decade!!). Almost ALL this initial work has been funded by small individual donors like yourselves and small grants.
If the clubs will not support such critical research, it sure raises lots of questions in my head about what they consider to be a serious health concern and what the health trusts are for. Already lack of support led to the researchers having to exclude MVD from this groundbreaking research. Imagine, we COULD have had a genetic test for MVD and understood, at last, the mode of inheritance, along with better understanding of SM. But that will not now happen for many, many years as much work will have to be wastefully duplicated to do such work in the future.
On donations towards this research -- small amounts all add up so please don't not give because you feel you cannot give much or enough. Any amount is enough! ! Consider even as little as $10 and give up eating lunch out for a couple of times... a lot of $10 donations add up very fast. A $50 or $100 here or there adds up even faster.
You can use direct debit, credit card or Paypal. NB I have put specific information on how to complete the online donations forms a few posts down now!!.
'BG" is Brussels Griffin breeders, who are doing a LOT amongst themselves and already pushed through one research grant by showing *united club support* internationally for SM research that is also helping cavaliers.
AKC CHF Grant # 954 - Identification of Genes Causing Chiari I Malfo
Posted by: "[email protected]" [email protected] gpc083
Fri Mar 28, 2008 1:24 pm (PDT)
I just spoke with Erika A. Werne who is the Director of Canine Research and
Education at the AKC CHF about the "pending" grant #954, Identification of
Genes Causing Chiari I Malformation in the CKCS.
Initially the CHF expected to hear back from the two US-based CKCS clubs by
the end of the year. Neither club has yet given the AKC CHF the approval for
the grant money. (She did say that one of the clubs has of recent date been
in contact with a list of questions so that may be a hopeful sign.)
I asked Ms. Werne when did she expect to know for certain whether the grant
money would be given to the University of Montreal and she said it would be
decided by the end of April. She also told me that if the two US-based CKCS
clubs do not support the grant that the AKC CHF more than likely will NOT fund
it.
I then asked her about the donor-advised direct contributions that the BG
breeder community used for their recent fundraising. Ms. Werne said that we in
the cavalier community can do likewise and that if the AKC CHF saw that the
grant had generated enough interest with private donations, that it might
make all the difference.
So, off I went to the AKC CHF site to record my own donation towards this
most important research grant. I ask you all to PLEASE consider doing the same.
Your contribution can be small, any amount is allowable. In fact, Ms. Werne
said that the BG community had many, many donations of small amounts that did
add up quite nicely.
For so many years now we have been chatting away on the various CKCS lists,
HOPING for the day when we might have access to a DNA test for SM. Here is
your chance to do something positive. Please spend a bit of your money to help
secure the healthy future of the CKCS by helping to fund the grant to find the
genes responsible for SM. Thank you for your kind consideration and below
is the information on how to donate to AKC CHF 954. Please let the CHF know
that this grant is IMPORTANT to all of us who love the CKCS!
Gerri Pryor Carter
_www.akcchf.org_ (http://www.akcchf.org)
Select option: Donation
Please specify amount:
Please direct my donation to: GRANT 954
And of course, permission is not only granted to cross-post but also greatly
appreciated!
If anyone within the clubs wishes to raise why this is NOT being funded within the US clubs, please do! If the genome research does not proceed, it may be decades before a DNA test for SM becomes a possibility, or the inheritance is understood, as it has taken several years to collect and do the preliminary work on the DNA that is ready for this research (about half a decade!!). Almost ALL this initial work has been funded by small individual donors like yourselves and small grants.
If the clubs will not support such critical research, it sure raises lots of questions in my head about what they consider to be a serious health concern and what the health trusts are for. Already lack of support led to the researchers having to exclude MVD from this groundbreaking research. Imagine, we COULD have had a genetic test for MVD and understood, at last, the mode of inheritance, along with better understanding of SM. But that will not now happen for many, many years as much work will have to be wastefully duplicated to do such work in the future.
On donations towards this research -- small amounts all add up so please don't not give because you feel you cannot give much or enough. Any amount is enough! ! Consider even as little as $10 and give up eating lunch out for a couple of times... a lot of $10 donations add up very fast. A $50 or $100 here or there adds up even faster.
You can use direct debit, credit card or Paypal. NB I have put specific information on how to complete the online donations forms a few posts down now!!.